Resource Links

ADHD

Autism

  • Autism Speaks: provides national and local resource guides for the families with children who have Autism spectrum disorders.
  • Autism Society: Provides national resources for families, individuals on the spectrum and professionals.
  • Oklahoma Autism Network:  Provides statewide resources, referral and family training to families, individuals with autism and professionals
  • Oklahoma Family Network: The Oklahoma Family Network (OFN) Family-to-Family Health Information Center informs and connects individuals with special health care needs and disabilities, their families and professionals to services and supports in their communities. OFN provides opportunities for individuals and families to strengthen their communities through leadership development and volunteering. The OFN Mentorship Program is the flagship program of the center.
  • Books: list of books for parents who have children with ASD.
  • Autism Resource List:  By popular demand…this is a list of resources for providers to offer their patients with autism, or a suspected diagnosis.
  • CDC’s latest autism screening recommendations  includes a great office workflow chart you can print and refer to!
  • Emory University has developed a quick screening technique PCPs can use in practice for autism called the Rapid ABC.  This screener only takes about 5 minutes and doesn’t require purchase of an expensive toolkit, just items you can easily obtain, like a ball and book. Click here to watch a short video on the techniques or visit emory.edu for more information.
  • •AAP guideline on therapies for Sensory Integration.

 

Intervention Resources for Autism:

  • Picture Exchange Communication System: is argumentative/alternative communication intervention package for individuals with autism spectrum disorder and related developmental disabilities.
  • Hanen Center: provide parents, caregivers, early childhood educators and speech-language pathologists with the knowledge and training they need to help young children develop the best possible language, social and literacy skills. This includes children with or at risk of language delays and those with developmental challenges such as Autism Spectrum Disorder, including Asperger Syndrome. Books are available to be purchased to promote language, social and literacy skills in young children.
  • Visual Schedules from do2learn.com: provides instructions of how to include picture cards and visual schedules to promote daily living, social and behavior skills . Free picture cards are available.
  • Visual Supports 4 page handout: a PDF file of how to create visual supports for children with Autism.
  • Special education parent handbook from Oklahoma State Department of Education: The handbook explains special education and the step-by-step instructions of individualized education program (IEP).
  • TRICARE Enhanced Access to Autism Services Demonstration: The service is  available to Active Duty family members enrolled in the ECHO (Extended Care Health Option) program.

Educational Supports for Autism:

  • Kansas Institute for Positive Behavioral Support: The Kansas Institute for Positive Behavior Support (KIPBS) is a training and certification program that teaches human service professionals how to develop and implement Positive Behavior Support (PBS) Plans for individuals with challenging behavior.
  • Recommendation for students with high function Autism by Kerry Hogan: lists suggestions of classroom accommodations for students with high function autism. From  TEACCH Autism program of University of North Carolina.
  • Project Peak: Autism Support Services are provided through Project PEAK, a collaborative effort of the Child Study Center and the Oklahoma State Department of Education.
  • A Functional Behavioral Assessment (FBA) can be requested by parents for children having disruptive behaviors in the classroom. This assessment involves a school psychologist or behavioral specialist coming into the classroom and observing for problematic behaviors, triggers to the behaviors.  From this assessment they can develop a behavior intervention plan in order to be more proactive in preventing the behaviors, reward desired behaviors with motivators for the student, and consistently have consequences for unwanted behaviors. The FBA can sometimes be difficult to obtain for families so you may wish to provide this letter template or help families customize the template to provide to schools to request the FBA. In some cases it is helpful to deliver the letter by certified mail for tracking purposes.

Developmental Screening:

Fetal Alcohol Spectrum Disorder:

  • Fetal Alcohol Spectrum Disorders Toolkit is a resource for primary care providers provided via the American Academy of Pediatrics in cooperation with the Centers for Disease Control and Prevention to ensure all children receive appropriate and timely interventions.  It is an excellent resource to guide clinicians in the screening, diagnosis, referral, and management of patients who may have been alcohol exposed.

Depression:

Resources for Educating Children with Special Needs

  • Special education parent handbook from Oklahoma State Department of Education: The handbook explains special education and the step-by-step instructions of individualized education program (IEP).
  • Do2Learn Teacher Toolkit is a website full of resources, supports, interventions and advice to help individuals with special needs learn and lead productive lives.  The resources may also be applied to help individuals with social or behavioral issues.
  • 3rd grade reading test provides a fantastic summary of what every parent and primary care provider should know about Oklahoma’s new Third Grade Reading Standardized Testing.
  • The National Alliance on Mental Illness reported the following about college students:
    • 30% struggle with school work due to mental illness
    • 25% experience suicidal thoughts
    • 14% engage in reckless behavior

    These shocking numbers moved the team at BestColleges.com to do more research about mental illness among students. We realized those struggling with mental illness contend with a true disability that requires the full support of their learning community. We published our College Guide for Students with Psychiatric Disabilities as a way to start a conversation about this issue. Our goal is to share this with as many students, families, and educators as possible. You can help the millions of students affected by mental illness by sharing this resource

Community Resources for Children with Special Needs

  • Mental Health Links from AAP Children’s Mental Health in Primary Care, provides links such as federal resources, children’s mental health and advocacy organizations, international organizations, special education and school-based mental health, professional organizations, academic centers focused on children’s mental health, organizations focused on suicide prevention, web sites for adolescents, child/adolescent health initiatives and family centered, and cultural competency resources.
  • Sooner SUCCESS: Care coordination for families, providers and communities.
  • SoonerStart: Oklahoma’s early intervention program is designed to meet the needs of infants and toddlers with disabilities and developmental delays.
  • SSI & Developmental Disabilities Services Division (DDSD): A link to the DDSD website of Oklahoma Department of Human Services or contact 405-521-3571. Home- and Community-Based Services  (HCBS) Waivers are available for persons with intellectual disabilities or certain persons with related conditions.
  • Oklahoma Assistive Technology Center (OATC) is dedicated to providing quality assistive technology services to Oklahomans with disabilities and their families; to providing professional and community education and technical assistance; and to research.
  • Make Promises Happen is an outdoor recreational program located in Guthrie, Oklahoma for individuals with special needs.  It serves children and adults ages 6 and older with any disability.
  • Easter Seals provides services to children and adults with special needs and often offers training and support to familes.
  • PhDinSpecialEducation is an online parenting handbook on raising a child with special needs.
  • Help Me Talk is a parent’s guide to speech and language stimulation techniques for children ages 1 through 3.

Resources for Behavior/Discipline

  • Rules for Unruly Children is a booklet for parents with children ages 5 through 18 with discipline issues.
  • Parent-Child Interaction Therapy (PCIT) is an empirically supported treatment for preschool children ages (2-7) with disruptive behavior. PCIT emphasizes changing the parent-child interactions to improve the nature of the parent/child relationship. For more information about PCIT please contact the Child Study Center at (405) 271-5700 or you can click here for an updated list of trained therapists.

Childhood Trauma

  • Pediatric Toolkit for Healthcare Providers This is a great toolkit for healthcare providers providing education on how to identify, treat, and refer children who have experienced trauma
  • http://oklahomatfcbt.org is a great website that has resources on helping cope after experiencing a tornado as well as an interactive map showing the contact information for trauma-focused cognitive behavior therapy providers.  TF-CBT is the most well-researched therapy model for treating symptoms of childhood trauma. To date, there are 22 studies showing that TF-CBT is effective in improving child functioning after trauma

Sensory Integration Disorder/Sensory Processing Disorder